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Fibrodysplasia ossificans progressiva

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Her muscles and ligaments are turning to bone

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Joshua's Story

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Rare medical condition called stone man syndrome, fibrodysplasia ossificans progressiva (FOP)

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Coming to Behind the Mystery: Fibrodysplasia Ossificans Progressiva (FOP)

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In Pursuit of a Cure: Sienna’s Story

Fibrodysplasia ossificans progressiva (FOP) also known as Münchmeyer disease is an extremely rare connective tissue disease. It is a severe, disabling disorder with no cure or treatment and is the only known medical condition where one organ system changes into another.
  • Signs and symptoms 

  • Causes 

  • Genetics 

  • Diagnosis 

  • Treatment 

  • Epidemiology 

  • History 

  • Research